Paediatric Brain Injury Rehabilitation Resources
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| ID | TOPIC Category | Title | Description | Audience | Resource TYPE & link |
| 1 | Phone Apps | TBI Staff Training - Phone Apps | Applications for Android and Apple to support clinical practice across rehabilitation domains. | Clinicians, parents, children | PHONE APS |
| 2 | Brain Injury awareness (What is brain injury?) | Causes of brain injury | Poster to raise awareness of causes of brain injury in children developed by the brain injury team at the Children's Hospital Westmead | Public, clinicians | WORD |
| 3 151 | Brain Injury awareness (What is brain injury?) | Brain Injury Association of America | This site has a section specific to paediatric brain injury - what to expect, incidence, symptoms, recovery and education considerations. | Consumers, clinicians, teachers | ORGANISATION |
| 4 | Brain Injury awareness (What is brain injury?) | Disability awareness | This video translates the World Health Organisation's international classification of functioning, disability and health (ICF) to relate to the priorities of young people. It's inspiring! | Young people | VIDEO |
| 5 | Brain Injury awareness (What is brain injury?) | "Going Home" | Going home from ICA/Acute | Consumers, clinicians, teachers | DVD |
| 6 134 | Brain Injury awareness (What is brain injury?) | Synpase The Facts | The national body dedicated to reconnecting the lives of those affected by brain injury. This is a guide to understanding brain injury for people with brain injury and family/ close others. There is a section specific to children with brain injury, common issues people with brain injury encounter, building resilience for families, dealing with grief and loss, returning to school tips plus more | Consumers, parents | |
| 7 | Challenging Behaviours | ACI Challenging Behaviours Paediatric Project | This report details a statewide project investigating the prevalence and burden of challenging behaviours assoicated with brain injury in order to improve outcomes for patients and families/ caregivers. A useful tool to understand the depth of these issues and ACI input in this area. | Clinicans | |
| 8 46 | Challenging Behaviours | Resilience buidling in kids and enc positive behaviour- Parentwise Podcast Series |
This Cerebral Palsy Alliance podcast series offers practical tips for parents on a variety of issues including encouraging positive behaviour and resilience | Parents | PODCAST |
| 9 | Challenging Behaviours | SWIBRS - Challenging Bahavious Booklet | Information and strategies for parents and all people involved in supporting a child with behaviour changes post brain injury. In depth analysis and problem solving strategies explored. | Parents, clinicians, teachers | |
| 10 | Challenging Behaviours | Tim Feeney Best Behaviours workshop 2015 - Click box below to view video |
2015 presentation by Tim Feeney - Supporting people with complex needs to lead fulfilling and meaningful lives using positive behaviour support interventions. The approach is applicable to both children and adults. | Clinicians | VIDEO |
| 11 | Challenging Behaviours | "Big Deal/Little Deal" TOOLS | Practical tools for working with children and teaching self regulation strategies. | Clinicians, parents, children, teachers | |
| 12 | Challenging Behaviours | Fatigue Scales - MWBIRP | Practical tools for working with children and teaching self regulation strategies. | Clinicians, parents, children, teachers | WORD |
| 13 | Challenging Behaviours | Self Regulation Tools |
Practical tools for working with children and teaching self regulation strategies. | Clinicians, parents, children, teachers | ONLINE TOOL |
| 14 | Challenging Behaviours | Synapse Behavious Fact Sheets | Synapse fact sheets on a variety of behavioural issues and management approaches.These are not paediatric specific but with clinical discernment will have application to the paediatric population | Clinicians, parents, teachers | FACT SHEETS |
| 15 18 | Challenging Behaviours | Project Learnet | Website produced by the Brain Injury Association of New York State which includes detailed information on approaches to rehabilitation, behavioural issues, support in schools, communication supports, facilitating self regulation and physical and medical issues post brain injury. | Teachers, clinicians, parents, children | ONLINE TOOL |
| 16 | Cognitive Rehabilitation/Executive function | Heads up on BI - SWIBRS | Fact pack written for kids which covers recovery, mental health issues, fatigue, surviving school, sexuality, driving and relationships plus heaps more | Children | |
| 17 | Cognitive Rehabilitation/Executive function | Achieving Goals - SWIBRS | A fact pack to help with goal setting, decision making and planning. It details the Goal Plan Predict Do Review approach and has clear resources to structure each stage of this approach. A resource for anyone working with a child with brain injury. | Parents, clinicians, teachers | |
| 18 15 | Cognitive Rehabilitation/Executive function | Project Learnet | Website produced by the Brain Injury Association of New York State which includes detailed information on approaches to rehabilitation, behavioural issues, support in schools, communication supports, facilitating self regulation and physical and medical issues post brain injury. Great resources for clinicians and teachers. | Teachers, clinicians, parents, children | ONLINE TOOL |
| 19 | Fatigue Management | Fatigue and Traumatic Brain Injury |
A fact sheet explaining different sorts of fatigue post brain injury and management strategies. | Consumers, clinicians, teachers | |
| 20 | Fatigue Management | Fatigue diary - MWBIRP | Example of a diary format for monitoring fatigue and activity levels | Children, teenageers, parents, teachers, clinicians | WORD |
| 21 | Fatigue Management | Brain injury - Cognitive fatigue | A fact sheet for identifying and managing fatigue following paediatric brain injury. | Parents, teachers, clinicians | WEB PAGE |
| 22 | Goal setting/ planning | Goal setting tips for ABI Staff |
Goal setting tips for clinicians working with people with ABI applicable to both adults and children. | Clinicians | WEB PAGE |
| 23 | Goal setting/ planning | Carers Australia Carer needs checklist |
Planning check list which includes consideration of carer burden and carer needs. | Clinicians, consumers | |
| 24 | Goal setting/ planning | Talking Mats - communication support |
Talking mats are an excellent tool to use with clients of all levels of communication ability in the goal setting and plannning process. This site details resources and training for their use. | Clinicians | ORGANISATION |
| 25 | Goal setting/ planning | School Leaver Employment Support (SLES) resources NDIS |
Assistance to navigate the School Leaver Employment Support (SLES) program written for year 12 students, support from parents or clinicians will likely be needed to navigate the site and resources | Clinicians, consumers | WEB PAGE |
| 26 | Goal setting/ planning | NDIS Pre-planning Toolkit for people with an ABI | A Pre-planning Toolkit for people with an Acquired Brain Injury entering Higher Education or Vocational Education and Training | Clinicians, consumers, teachers | |
| 27 | Goal setting/ planning | Transition Wheel | The transition wheel is a great tool for clinicians to help young people assess where they are at in their lives, where they want to be and what areas they want to work on. | Clinicians | ONLINE TOOL |
| 28 | Goal setting/ planning | iCare planning tools |
iCare suite of planning tools for clinicians | Clinicians, | ONLINE TOOL |
| 29 | Goal setting/ planning | NDIS planning Cerebral Palsy Allicance (CCPA) Preparation & Support Summary |
CPA preparation and support summary form: this is a good example of an NDIS provider organisations resources to assist planning conversations with children and caregivers. | Clinicians, consumers | |
| 30 | Info for Parents/ carers | The disability trust Disability Trust Foundation 's Tips & Tricks document |
UK website | Parents | |
| 31 | Info for Parents/ carers | Glossary of terms | Glossary of ABI terminology which may be of assistance to some caregivers. | Consumers | WEB PAGE |
| 32 | Info for Parents/ carers | SWIBRS Family information folder has segment on RTS | 1st edition, updated version retitled and reorganised | Parents | |
| 33 111 137 | Info for Parents/ carers | Step by step booklets 1-3 An introduction to the Brain Injury Rehabilitation Team, Understanding the causes and effects of brain injury, Physical recovery and learning after brain injury. | Sydney Children's Hospital Network booklets. Great for explaining the Brain Injury Rehabilitation team, causes and effects of brain injury and different aspects of the recovery journey. | Parents, carers | |
| 34 | Info for Parents/ carers | My child has an ABI | N External website |
Parents, carers | |
| 35 | Info for Parents/ carers | Jumo discussion guide for parents on dx of TBI | A guide for parents to help conversations with doctors when their child has been diagnosed with a brain injury. | Parents, carers | |
| 36 | Info for Parents/ carers | Stress Management The Help You Need | Useful information for parents on recognisng and managing stress after a child sustains a brain injury | Carers | |
| 37 157 | Info for Parents/ carers | SWIBRS choosing a School | Information and strategies for parents on choosing and transitioning to a High School which includes timelines for planning and forms for communicating important information with schools. | Parents | |
| 38 158 | Info for Parents/ carers | Synapse parents pack |
A parents pack of multiple fact sheets on a range of topics including emerging sexuality, language and living skills, drugs and alcohol plus lots more | Parents, carers, clinicians | WEB PAGE |
| 39 | Info for Parents/ carers | Especially for Parents -SWIBRS | "Especially for Parents" covers many areas including how to talk with your child, communication strategies, returning to school and returning to sport plus lots more. | Parents | |
| 40 | Info for Parents/ carers | Behaviour booklet - SWIBRS - | Information and strategies for parents and all people involved in supporting a child with behaviour changes post brain injury. Indepth analysis and problem solving strategies are explored | Clinicians, consumers, teachers | |
| 41 | Info for Parents/ carers | What brain injury surviors want you to know | What is the experience of brain injury from the perspective of someone with a brain injury? Useful tips on how to respond, what helps and what doesn't. | Consumers, clinicians, teachers | WEB PAGE |
| 42 160 | Info for Parents/ carers | Returning to School after Brain Injury | Returning to school after Brain Injury is a practical video resource for family, teachers and other carers. It follows the journey of Nick through his hospital stay, explains the rehabiliitation team and their roles as well as return to school. | Parents, teachers, clinicians | VIDEO |
| 43 | Info for Parents/ carers | Families Coping with Loss and Change After Brain Injury - The Help you need | Coping with loss and change. Information for families and strategies for self care. | Parents, siblings | |
| 44 | Info for Parents/ carers | Sporting Associations |
Useful link for finding local relevant sporting associations. | Clinicans, parents | ORGANISATIONS |
| 45 | Info for Parents/ carers | Kids Safe NSW | Kid Safe NSW offers a range of information and strategies for keeping kids safe in day day life. | Parents | ORGANISATION |
| 46 8 | Info for Parents/ carers | Resilience buidling in kids and enc positive behaviour |
This Cerebral Palsy Alliance podcast series offers practical tips for parents on a variety of issues including encouraging positive behaviour and resilience strategies. | Parents | PODCAST |
| 47 56 | Info for Parents/ carers | Living with a Chronic Illness | A great comic style video resource for kids saying how it really is to have a sibling with a chronic health issue. | Siblings, children | VIDEO |
| 48 | Info for Parents/ carers | Siblings booklet - SWIBRS | A great resource for siblings of children with brain injury to help understandwhat is happening to their family, what a brain injury can be like, good supports for them and how they can contribute and help in their family. | Siblings | |
| 49 | Info for Parents/ carers | Douglas Dog | A child friendly workbook style resource explaining brain injury including sections on feelings, changes to family dynamics and rehabilitation. | Children | |
| 50 | Info for Parents/ carers | Siblings Australia Inc | Organisation promoting better support for siblings of children and adults with disability - resources,workshops, research and advocacy. The target audience is both siblings and parents of chidren with brain injury. | Siblings | ORGANISATION |
| 51 | Info for Parents/ carers | Siblings and Acquired Brain Injury | Peak body Synapse information for siblings of children with brain injury. | Parents, siblings | WEB PAGE |
| 52 | Information for Teenagers with BI | The disability trust |
This is an accessible manual for young people following brain injury which covers many areas including "Health, Remembering, fighting, getting organised, getting help, dealing with emotions" plus lots more. | Young people, teemages | |
| 53 88 | Information for Teenagers with BI | Teens coping with loss and change after brain injury | A Holland Bloorview resource - Recognition of loss post brain injury and support strategies for teenagers. | Teenagers | |
| 54 92 | Information for Teenagers with BI | Heads up on Brain Injury - SWIBRS | Fact pack for kids which covers recovery, mental health issues, fatigue, surviving school, sexuality, driving and relationships plus heaps more. | Children | |
| 55 | Information for Teenagers with BI | Study Skills - SWIBRS | Extensive resource detailing strategies to help with study after brain injury written for teenagers. Support from a parent, teacher, or clinician to identify most relevant parts of this booklet for each student may be useful | Teenagers, parents, clinicians, teachers | |
| 56 47 | Information for Teenagers with BI | Living with a chronic illness | Cartoon style short video about a brother and sister on a journey to learn what it means to have a chronic illness and how it can be managed. Great for building empathy and understanding for all family members. | Children | VIDEO |
| 57 | Information for kids with BI | A hit on the head |
Animation for children which follows Harrison's journey of brain injury from incident to return to school and recovery. | Children | VIDEO |
| 58 | Information for kids with BI | La Publishing Books written for kids on concussion and brain injury |
Child audience focussed books for purchase on topics of brain injury and concussion. | Children | ORGANISATION |
| 59 73 | Services: Brain Injury and Key Organisations | Brain Injury Australia |
Consumers | ORGANISATION | |
| 60 | Services: Brain Injury and Key Organisations | Synapse |
ORGANISATION | ||
| 61 177 | Services: Brain Injury and Key Organisations | Trapeze | ORGANISATION | ||
| 62 | Services: Brain Injury and Key Organisations | Parachute Canada | ORGANISATION | ||
| 63 | Services: Brain Injury and Key Organisations | Spinal Cord Injuries Australia |
ORGANISATION | ||
| 64 | Services: Brain Injury and Key Organisations | Agency for Clinical Innnovation | HEALTH | ||
| 65 | Services: Brain Injury and Key Organisations | CanChild | ORGANISATION | ||
| 66 | Services: Brain Injury and Key Organisations | Vision Australia | ORGANISATION | ||
| 67 | Services: Brain Injury and Key Organisations | Cerebral Palsy | ORGANISATION | ||
| 68 | Services: Brain Injury and Key Organisations | Guide Dogs | ORGANISATION | ||
| 69 | Services: Brain Injury and Key Organisations | Holland Bloorview Kids Rehabilitation Hospital | ORGANISATION | ||
| 70 | Services: Brain Injury and Key Organisations | Child and Adolescent Brain Injury Rehabilitation Service, SA | ORGANISATION | ||
| 71 | Servcies: Advocacy | DSS | GOVT | ||
| 72 | Servcies: Advocacy | People with Disability (PWD) |
ORGANISATION | ||
| 73 59 | Servcies: Advocacy | Brain Injury Australia |
ORGANISATION | ||
| 74 | Servcies: Advocacy | Mulitcultural disability advocacy association | ORGANISATION | ||
| 75 | Insurance Schemes | NDIS | GOVT | ||
| 76 | Insurance Schemes | ICARE | GOVT | ||
| 77 | Insurance Schemes | SIRA | GOVT | ||
| 78 | Professional development for clinicians | AASBI |
Clinicians | ORGANISATION | |
| 79 129 | Professional development for clinicians | My support space | Clinicians | ORGANISATION | |
| 80 | Professional development for clinicians | Speech bite | Clinicians | ORGANISATION | |
| 81 | Professional development for clinicians | Psychological Database for Brain Impairment Treatment Efficacy |
Clinicians | ONLINE TOOL | |
| 82 | Professional development for clinicians | Centre for Disabilities studies |
Training event schedule on topics such as relationships and sexuality workshop | Clinicians | ORGANISATION |
| 83 | Professional development for clinicians | NSW Health Allied to Kids | Allied to Kids virtual telehealth educational program for clinicians working with children with disability. | Clinicians | ORGANISATION |
| 84 | Professional development for clinicians | iCare Training |
NSW state insurance and care scheme to provide for long term care needs of people with severe injuries from the road or workplace. This link directs to online and in person training including goal setting, case management, PCANS, WiFIM | Clinicians | GOVT |
| 85 | Mental health | Kindle QOL paeds |
Health related QOL tool for childrent and adolescents aged 3 and above | Clinicians | ONLINE TOOL |
| 86 | Mental health | APS online safety strategies |
The Australian Pyschological Society provides detailed practical strategies to support children's use of technology safely and positively. | Parents, caregivers | ONLINE TOOL |
| 87 | Mental health | Brain link manual |
This is a detailed manual developed by ARBIAS Brainlink and Headway Victoria specific to mental health concerns and ABI in adults. While not a paediatric focussed resource it may provide useful background knowledge in conjuction with appropriate specialised ABI/mental health paediatric care. | Clinicians | |
| 88 53 | Mental health | Teens coping with loss and change after brain injury |
A Holland Bloorview resource - Recognition of loss post brain injury and support strategies for teenagers. | Teenagers | |
| 89 | Mental health | Education system |
NSW education system information including counselling services, anti bullying information, child safety and mandatory reporting | Clinicians, consumers, teachers | WEB PAGE |
| 90 | Mental health | Beyond Blue | Information and support options specifically for youth including 24 hour phone line support and specified hours online chat support. | Children, young people | ORGANISATION |
| 91 | Mental health | American Pyschological Association | American pyschological association advice for parents regarding positive use of technology and screen time | Parents | WEB PAGE |
| 92 54 | Mental health | Heads up on Brain Injury - SWIBRS | Fact pack for kids which looks at recovery, mental health issues, fatigue, surviving school, sexuality, driving, relationships, plus heaps more | Children | |
| 93 | Mild TBI/ Concussion/Return to sport | Centre for disease control and prevention Paediatric mild brain injury guideline | This guideline consists of 19 sets of clinical recommendations that cover diagnosis, prognosis, management and treatment. | Clinicians | WEB PAGE |
| 94 | Mild TBI/ Concussion/Return to sport | Centre for disease control and prevention | Discharge information for caregivers including explanation of concussion and strategies to support recovery. | ||
| 95 | Mild TBI/ Concussion/Return to sport | Concussion Recovery tips from the Centre for disease control and prevention | This resource provides general information as well as strategies for specific difficulties children may experience with mild brain injury. | Parents | |
| 96 | Mild TBI/ Concussion/Return to sport | Holandbloorview concussion handbook - Click box to open |
Workbook to be used with families to support recovery following mild brain injury for return to school, return to physical activity and sport. | Parents, children, clinicians, teachers | |
| 97 | Mild TBI/ Concussion/Return to sport | Understanding concussions | Comic style animation for children explaining concussion and what happens when the brain is injured as well as what recovery can look like. | Children | ANIMATION |
| 98 | Mild TBI/ Concussion/Return to sport | Concussion and mild head injury | SCHN factsheet covers signs and symptoms, when to seek medical advice, return to school and return to sport information | Consumers | |
| 99 | Mild TBI/ Concussion/Return to sport | Child SCAT3 |
Usage? | ||
| 100 | Mild TBI/ Concussion/Return to sport | Ontario guidelines |
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| 101 | Mild TBI/ Concussion/Return to sport | Return to activity / return to school guidelines CanChild |
CanChild collection of resources including infant/toddler guidelines,child youth return to activity and return to school guidelines and activity suggestions for different stages of recovery | Consumers, clinicians, teachers | WEB PAGE |
| 102 | Mild TBI/ Concussion/Return to sport | Parachute Link page to resources for carers/ teachers/ health professionals |
WEB PAGE | ||
| 103 | Mild TBI/ Concussion/Return to sport | Concussion Recognition Tool | Recognising concussion - british - Concussion Recognition Tool 5 April 26th 2017 | ||
| 104 | Mild TBI/ Concussion/Return to sport | Australian Institute of Sport and Australian Medical Association Concussion in Sport Position Statement |
Position statement updated Nov 2017 from AIS and AMA. See page 9 for flow chart for under 18's and following pages for medical and non medical on and off field concussion assessment flowcharts. | Clinicians, parents, teachers, sports people | |
| 105 | Mild TBI/ Concussion/Return to sport | CHISM fact sheets link |
Fact sheets for concussion management, return to activity, school and sport plus GP resources and sample letters. | Consumer, clinicians | WEB PAGE |
| 106 | Mild TBI/ Concussion/Return to sport | Case Managers Guide | Children and young people with ABI - Guide for case managers | Clinicians | |
| 107 | Mild TBI/ Concussion/Return to sport | Parenting website Raising Children |
Developmental stages are exploredin detail across the age ranges. | Parents | WEB PAGE |
| 108 | Mild TBI/ Concussion/Return to sport | The Brain Injury Guide and Resources A Collaboration of the Missouri Department of Health and Senior Services and the MU Department of Health Psychology 2012 |
Section on cognitive development at different age levels but not physical milestones | Clinicians, parents | WEB PAGE |
| 109 | Orientation | Challengiing Behavious | This report details a statewide project investigating the prevalence and burden of challenging behaviours assoicated with brain injury in order to improve outcomes for patients and families/ caregivers. A useful tool to understand the depth of these issues and ACI input in this area. | ||
| 110 | Orientation | SCHN -BI team Westmead what is CM? | Westmead brain injury team information which includes explaining the role of case management and opportunities at the yearly Camp Go Ahead. | WEB PAGE | |
| 111 137 33 | Orientation | Step by step booklets 1-3 An introduction to the Brain Injury Rehabilitation Team, Understanding the causes and effects of brain injury, Physical recovery and learning after brain injury. | Sydney Children's Hospital Network booklets for parents and caregiver's of children who have sustained a brain injury. | Parents, carers | |
| 112 | Orientation | ACI Consumer Engagement Model of Care review |
This document gives insight into ACI's ongoing work in the arena of consumer engagement in Brain Injury Rehabilitation | ||
| 113 | Orientation | ACI NSW Brain Injury RehabiliationProgram (BIRP) brochure |
ACI brochure which explains NSW BIRP structure and role. | ||
| 114 | Orientation | ACI Case Management in BIRP flier |
A visual representation of case management in BIRP with the client at the centre of care. | ||
| 115 | Orientation | Courage to Care | ACI site which provides further detail and videos for each BIRP service | ||
| 116 | Orientation | ACI - Case Management Model of Care Click box to open |
ACI document outlining the case management model of care in brain injury rehabilitation. | ||
| 117 | Orientation | ACI - carers information by Cheryl Koenig |
Access to Cheryl Koenig's book "The courage to care", a great resource for both clinicians and consumers. | Parents | |
| 118 | Orientation | Gabrielle's story 16 at injury |
Client stories - resources for both consumers and clinicians for building awareness around brain injury recovery. | Clinicians, consumers | VIDEO |
| 119 | Orientation | Jonathon's story 12 at injury |
Client stories - resources for both consumers and clinicians for building awareness around brain injury recovery. | Clinicians, consumers | VIDEO |
| 120 | Orientation | Alana Client stories |
Client stories - resources for both consumers and clinicians for building awareness around brain injury recovery. | Clinicians, adolescents, parents, carers | VIDEO |
| 121 | Orientation | Anna Khan's story Headway Uk |
Client stories - resources for both consumers and clinicians for building awareness around brain injury recovery. | Clinicians, adolescents, parents, carers | WEB PAGE |
| 122 | Orientation | More children's stories |
Client stories - resources for both consumers and clinicians for building awareness around brain injury recovery. | Clinicians, adolescents, parents, carers | WEB PAGE |
| 123 136 | Orientation | RCH Factsheets |
Fact sheets on a variety of topics related to paediatric brain injury produced by the Royal Children's Hospital Melbourne. | Parents | WEB PAGE |
| 124 | Orientation | Disability awareness F words |
This video translates the World Health Organisation's international classification of functioning, disability and health (ICF) to relate to the priorities of young people. It's inspiring! | Consumers, clinicians | VIDEO |
| 125 | Orientation | What is Neuropsych ax brain link |
Consumers | ||
| 126 140 | Orientation | SWIBRS packs(8) | A pack of 8 booklets developed by South West Brain Injury Service. These are second edition revised resources(2016). They are a great support written for children, parents, teachers and aides. •Achieving Goals • Behaviour • Especially for Parents • Heads Up on Brain Injury • Choosing a School • Siblings • Study Skills • Teachers and Aides (Maybe list these in blurb or list with their attachments?) |
Parents, chuildren, clinicians, teachers | See separate entries |
| 127 | Orientation | Centre for Community welfare training - training calendar - resilience/ trauma/ parenting/ advocacy - |
The Centre for Community Welfare Training's calendar for available professional development online and in person events. | ORGANISATION | |
| 128 | Orientation | Therapeutic relationship - getting feedback - Routine session feedback form | Routine session rating scale to support the therapeutic relationship, flag issues and reroute interventions when indicated. This non standardised form is a Mid Western Brain Injury Rehabiliation Program adaptation by Speech Pathologist Meredith Porter from Scott Miller's session rating scales. For potential use with children and significant others. See scottdmiller.com for more information on session rating scales. | Clinicians | |
| 129 79 | Orientation | My Support Pspace | Support space for clinicians working with people with brain injury living in supported care environments - resources and links. | Clinicians | ORGANISATION |
| 130 | Orientation | Paediatric Referral Process | This document offer guidelines for referral to NSW BIRPs, contact details and service specific criterion. | Clinicians | WORD |
| 131 | Orientation | NSW BIRP referral form | Referral form developed to aid smooth transition between services. Please use this form to refer to metropolitan and rural BIRPs. | Clinicians | WORD |
| 132 | Orientation | NSW Health Allied to Kids | Allied to Kids offer secondment opportunities with intakes throughout the year, if you are interested contact them at any time to discuss timing for your learning needs. | Clinicians | ORGANISATION |
| 133 | Orientation | NSW Education system and children with disabilities - |
NSW education system link which includes information on roles and responsibilities of school staff, personalised learning and support, transition supports, disability standards for education and , adjustments to teaching and learning | Clinicians, carers, families, teachers | GOVT |
| 134 6 | Packs/ service specific | Synpase The Facts | National body dedicated to reconnecting the lives of those affected by brain injury. This is a guide to understanding brain injury for people with brain injury and family/ close others. There are sections specific to children with brain injury, common issues people with brain injury encounter, building resilience for families, dealing with grief and loss, returning to school tips plus more | Consumers, parents | WEB PAGE |
| 135 38 | Packs/ service specific | Synapse parents guide |
A parents pack of multiple fact sheets on a range of topics including emerging sexuality, language and living skills, drugs and alcohol plus lots more | Parents | WEB PAGE |
| 136 123 | Packs/ service specific | RCH Factsheets |
Fact sheets on a variety of topics related to paediatric brain injury produced by the Royal Children's Hospital Melbourne. | Parents | WEB PAGE |
| 137 33 111 | Packs/ service specific | Step by step booklets 1-3 An introduction to the Brain Injury Rehabilitation Team, Understanding the causes and effects of brain injury, Physical recovery and learning after brain injury. | Sydney Children's Hospital Network booklets for parents and caregiver's of children who have sustained a brain injury. | Parents, carers | |
| 138 153 | Packs/ service specific | QLD Health school pack |
Fact sheets cover a range of issues relating to returning to school following brain injury | Parents, teachers, clinicians | WEB PAGE |
| 139 | Packs/ service specific | Child Brain Injury Trust UK | Extensive E learning library of past webinars on a comprehensive range of topics in paediatric brain injury rehabilitation. Use the links to request a session and access will be provided by a moderator from the organisation. | Clinician | ORGANISATION |
| 140 126 | Packs/ service specific | SWIBRS packs(8) | A pack of 8 booklets developed by South West Brain Injury Service. These are second edition revised resources(2016). They are a great support written for children, parents, teachers and aides. •Achieving Goals • Behaviour • Especially for Parents • Heads Up on Brain Injury • Choosing a School • Siblings • Study Skills • Teachers and Aides (Maybe list these in blurb or list with their attachments?) |
Clinicians, parents, children, siblings | See separate entries |
| 141 | Parenting Supports (not BI specific) | Raising children | Australian Parenting website with an extensive range of resources and supports | Parents | ORGANISATION |
| 142 | Parenting Supports (not BI specific) | Zero to Three - supporting early brain development |
The Zero to Three website includes topics such as Early Development & Well-Being,and Early learning and Parenting | Parents | ORGANISATION |
| 143 | Parenting Supports (not BI specific) | SCHN Kids Health | SCHN site for child health and safety, information via books and fact sheets | Parents | ORGANISATION |
| 144 | Physical recovery | Cerebral Palsy Alliance Parenting Podcast | This podcast series covers a variety of topics specific to children with cerebral palsy but also relevant to children with brain injury. Included are motorised mobillity aid considerations. | Parents | PODCAST |
| 145 | Physical recovery | Gavin Williams Gait retraining resources |
Gait retraining specialist information for clinicians, there is a link to an outcome measurement tool (HiMAT) and publications by Gavin Williams. | Clinicians | WEB PAGE |
| 146 | Physical recovery | Physiotherapy Exercises | Easy to use exercise provision for consumers with the function to create individualised programs. | WEB PAGE | |
| 147 | Recreation/Leisure | SCH Links to recreation supports |
SCHN rehabilitation suggestions for leisure and sport activities for children with disabilities and good questions to consider when looking for a suitable activity group. This site includes links to organisations such as Disabled Surfers. | Clinicians, consumers | ORGANISATION |
| 148 | Resilience for families | My Adult Child has an ABI | Ext website | ||
| 149 | Resilience for families | A Parents Toolkit School issues for students with disabilities | |||
| 150 | Return to School | Returning to education support and advice | Support and advice for children returning to school following ABI, inspired by Sam White's journey and legacy. | Parents, teachers, clinicians | ORGANISAITON |
| 151 3 | Return to School | Brain Injury Assosiation of America | N | ORGANISAITON | |
| 152 | Return to School | BIA factsheet |
Y 2010 |
||
| 153 138 | Return to School | QLD Health school pack |
Fact sheets which cover a range of returning to school considerations following brain injury. | Parents, teachers, clinicians | HEALTH |
| 154 | Return to School | Inclusion in classroom principles Holland Bloorview |
Great practical tips for encouraging an inclusive classroom from Holland Bloorview | Teachers, clinicians, parents | |
| 155 | Return to School | Mild/concussion RTS Holland Bloorview |
Considerations for return to school mild BI | Teacher, clinicians | |
| 156 | Return to School | Mild BI RTS Holland Bloorview concussion Timeline |
Return to school specifics following mild brain injury, some stategies may be useful for other students with moderate to severe brain injury also. | Parents, teachers, clnicians | |
| 157 37 | Return to School | SWIBRS choosing a School | Information and strategies for parents on choosing and tranistioning to High School which include timelines for planning and forms for communicating important information | Parents | |
| 158 175 | Return to School | SWIBRS Study Skills | Extensive resource detailing strategies to help with study after brain injury written for teenagers. Clinician support to identify most relevant parts for each student may be useful | Teenagers, parents, clinicians, teachers | |
| 159 | Return to School | Parachute Concussion focus RTSchool |
WEB PAGE | ||
| 160 42 | Return to School | Returning to School after Brain Injury | Returning to school after Brain Injury is a practical resource for family, teachers and other carers. It follows the journey of Nick through his hospital stay, explains the team and their roles and the return to school process. | Parents, teachers, clinicians | VIDEO |
| 161 | Return to School | Department of Education resource - personalised learning support |
A national education resource which details the school process and responsibilities in ensuring suitable personalised learning supports are in place for children with a disability. A good resource for clinicians to familiarise themselves with school process and expectations. There are also further resources listed in this document regarding disability standards for education. | Teachers, clinicians, parents, children | GOVT |
| 162 | Return to School | SWIBRS Teachers and Aides | Ideas, strategies, and resources for teachers and aides working with a student who has sustained a brain injury.These strategies can also be useful for all students in a classroom. | Teachers | |
| 163 | Self care for clinicians | Essential thriving guide |
TBI staff training resource - tips for clinicians for self care to support engagement in this challenging work effectively for the longer term. | Clinicians | WEB PAGE |
| 164 | Sexuality | Synapse factsheet |
Synapse fact sheet for parents regarding sexual development of young children and brain injury including ways to talk with your child | Parents | WEB PAGE |
| 165 | Sexuality | Part of transition toolkit | Introductory information for youth about sexuality and brain injury from "The next step" transition toolkit. | Young people | WEB PAGE |
| 166 | Sexuality | Synapse - Emerging sexuality |
Synapse fact sheet for parents regarding emerging sexuality and their child. | Parents | WEB PAGE |
| 167 | Social skills | Brain injury Social skills | A fact sheet from the Royal Children's Hospital Melbourne which provides information about social skills and paediatric brain injury | Parents | WEB PAGE |
| 168 | Social skills | Communication and Friendship | Information and advice for young people as part of "The next step" transition package on communication and friendship | Young people | WEB PAGE |
| 169 | Social skills | Parents guide - Building social skills fact sheet | A guide for parents to support the growth of social skills in their child with brain injury | Parents | WEB PAGE |
| 170 | Social skills | Communicate with confidence | Communicate with Confidence is a book for purchase - A resource for anyone wanting to help others develop social skills by Sloan, Mackey and Chamberlain. | Clinicians | WEB PAGE |
| 171 | Social skills | Child Brain Injury Trust UK | Extensive E learning library of past webinars on a comprehensive range of topics in paediatric brain injury rehabilitation including social skills and interventions to support development. Use the links to request a session and access will be provided by a moderator from the organisation. | Clinicians | WEBINARS |
| 172 | Social skills | TBI staff training conversation tips short section on strategies |
Conversation tips and managing tricky social situations from "The next Step" transition pack. | Young people | WEB PAGE |
| 173 | Study skills | Study skills you tube tutorial |
There are many strategies for study skills explained in depth in this video. The pace is fast. It is likely students will need support to interpret and stop/ start viewing during the most relevant sections. | young people, | VIDEO |
| 174 | Study skills | Cornell notes from wiki | Clear step by step instructions on effective note taking, great resource to work through with children or parents helping their child to study. Teachers may also like the layout and clarity of this document. | Teenagers, parents, clinicians, teachers | WEB PAGE |
| 175 158 | Study skills | SWIBRS Study Skills | Extensive resource detailing strategies to help with study after brain injury written for teenagers. Support to identify most relevant parts for each student will be useful | Teenagers, parents, clinicians, teachers | |
| 176 | Study skills | Ronald McDonald Learning Program | This national program helps children with serious illness catch up at school post lengthy hospital stays. Education for teachers to support children on return to school post illness is also offered. | Clinician, parent, teachers | ORGANISATION |
| 177 61 | Transition | Trapeze | Trapeze is a service for children 14 to 25 yrs old known to SCHN with a chronic health condition to assist transitioning from paediatric to adult services. There are also lots of resources for planning purposes here. | Consumers, clinicians, other health services | ORGANISATION |
| 178 | Transition | The next step transition toolkit |
A great resource covering a range of topics written for yourg people transitioning to adulthood. | Young people | ONLINE TOOL |
| 179 | Visual Issues post neurological event | Visual issues post neurological event |
You tube video overview of potential visual issues post ABI from the Christchurch Group, Neurological Rehabiliation | Clinicians, consumers, teachers | VIDEO |
| 180 | Visual Issues post neurological event | RCH fact sheet Eyes and Vision | This fact sheet discusses possible changes to vision following brain injury, their assessment and management options. | Parents | WEB PAGE |
181 |
Visual Issues post neurological event | Heminaopia explained and simulated |
This video provides a practical simulation of what it is like to experience hemianopia plus management strategies for a variety of issues. | Parents, teachers, children, clinicians | VIDEO |
182 |
Information for Teenages | Drugs and the developing brain |
Respect Your Brain animated series: How do drugs affect the developing brain? Three videos: Areas of the brain in development Alcohol and the developing brain; Cannabis and the developing brain; MDMA and the developing brain. Getting help for drug and alcohol issues | Parents, teachers, children, |
VIDEO ANIMATION |
| ID | TOPIC Category | Title | Description | Audience | Resource TYPE & link |